The Short Bus Diaries » Confessions About Life With an Autistic Son

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Category Archives: Better Day

Away from It All

I’ve spent far too much time editing these photos and have no time left in the day to write anything mind-blowing. I took these portraits over the weekend during a rare family day (because either I or my husband am always working) at Oxon Hill Farm in Maryland. No matter what decision is issued by […]

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Elaine - May 28, 2013 - 8:07 pm

That you are able to smile at all is a testament to your strength and commitment. I hope the highlights of the day carry you for a while.

The Gift of His Smile

Every evening, when my son has reached his apex of energy for the day (read: screeching, opening and slamming the doors on his sister’s play kitchen, repeatedly pushing the buttons on all three of those damned refrigerator musical toys at the same time, begging/obsessing over food), we open up the doors of our kitchen and […]

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Lacey R - April 26, 2013 - 12:41 pm

Your BEST. POST. EVER!!! Loved this story and peek into your life, Maya.

Ginny - April 26, 2013 - 12:59 pm

Our autistic son – loves his trampoline too! He is 8, and has a typical sister – I so relate to your post….we spend alot of time and resources on our son, and have to make sure we don’t ignore her needs – especially an 11 year old girl! Our life changed as well when our son was diagnosed at 4….it is not an easy journey…thanks for your post!

Maya - April 26, 2013 - 1:01 pm

Thanks Lacey!

Jennie B - April 26, 2013 - 3:32 pm

“…screeching, opening and slamming the doors on his sister’s play kitchen, repeatedly pushing the buttons on all three of those damned refrigerator musical toys at the same time, begging/obsessing over food”

This is my son too.

And his smile is also perfect.

Lizbeth - April 26, 2013 - 11:10 pm

Sometimes the smile I get from my son is all it takes, when things are hard, to turn things around. Hat smile changes everything.

Sarah - April 27, 2013 - 10:22 am

such a sweet post! Smiling is magic!! PEACE

Sallie - May 7, 2013 - 10:45 pm

I’m sure you’ve probably heard of it, but on the off chance that you haven’t I wanted to pass it along — the Aid For Autistic Children Foundation, which offers debt relief for debt **already** incurred treating an autistic family member (up to $150k, I think):
http://www.aacfinc.org/understanding_autism.html

As a disclaimer, I have no link whatsoever to this foundation — and heard of it only recently, when a dear friend received literally life-changing assistance from them and thought of your blog.

Summertime

Not a whole lot to report around here.  We have one tired kid who’s falling asleep in his lunch because he can’t catch up on his sleep (usual story with all of us “Autism Parents”).  I’m still demanding that he puts an “I want” in front of the nouns he grunts at me when he […]

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Oh, Happier Days

I’ve definitely been rolling around in the mud of self-pity, sorry, and fear lately.  I’ve also been wearing an Christmas-sweater-ugly cloak of anger.  I’m not really out of this hole yet, to be sure.  But Max is having a better day.  So I thought it wise to write something nice so that anyone reading this […]

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toasty redhead - May 14, 2011 - 7:40 pm

Right on!

Gretchen - June 30, 2011 - 9:14 am

I was like you and over bought products, read almost every book on the market about therapies and parenting a child on the spectrum.
Long story short one thing that we could not live without was Melatonin.
http://www.webmd.com/brain/autism/news/20091012/melatonin-helps-autistic-kids-sleep
Highly worth trying. It has made such a difference in my son’s sleeping.

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