The Short Bus Diaries » Confessions About Life With an Autistic Son

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What I’ve Gained & Lost: Autism Awareness and Acceptance

So I clearly can’t speak for my son. I’m not even going to try. And since I have no idea what he thinks, other than when he is happy, sad, sleepy, hungry, or angry in a general sort of way, I am putting everything that follows within a bracket: I am not attempting to speak for […]

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Surviving the Middle of Nowhere

We’re not actually in the middle of nowhere. That’s just what it feels like to our friends in DC. We’re actually only about 65 miles from our old house, and can be back on Capitol Hill in about an hour and 15 minutes. See? Not that far. (But just far enough to flee to, should […]

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[…] Surviving the Middle of Nowhere […]

For a Good Time, Call Us. Our Standards are Pretty Low.

Lately, it has occurred to me to that we don’t give a shit about much, and that is a good thing. Of course, we shower, keep the house clean, and pay our bills. We feed our children and tell them that we love them. We schedule the right doctors’ appointments and react appropriately to serious […]

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Why We Did It

I’m spending the night in the city again. I drag my suitcase quickly out of the car, aware that I don’t want to lean into the car for too long at this point of night and lose track of what might be happening behind me on the city sidewalk. After heading into our escape hatch […]

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Stephanie - June 18, 2015 - 7:09 pm

Thank you for sharing your life adventure. It is going to be a definite adventure and I wish you much luck in achieving everything! Love to you and your family!

Elizabeth Harms - June 18, 2015 - 10:38 pm

I am so glad you guys decided to do this! It gives parents everywhere a little light at the end of the tunnel … even though you’re in the middle of the tunnel. xo

Cindy - June 19, 2015 - 6:50 am

Wonderful for you! You may want to check out Camphill communities, who’ve existed around the world for 50+ years doing exactly what you are working towards. Maybe you could learn from their experience to make your own path a little bit easier. I think the closest ones to you would be the ones in Eastern Pennsylvania. Good luck to you!

http://www.camphillsoltane.org

The Lies We Tell Every Day

You might not like me very much after this post, but that’s something I’ll have to live with. After all, the main point of this post is just that–the truth is not very popular. I can only speak for my husband and myself here when I say that we lie every single day. We lie […]

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Julie S - June 19, 2014 - 1:01 pm

Yep, yep, yep, and yep. I’d like to guarantee that things will get better, but no one can guarantee that. I went through many of the things you describe when my boyz were younger and the isolation is still a huge part of my life. Many of the other things (poop smearing, breaking into food cabinets, climbing the furniture and breaking it, screaming tantrums and punched through walls) have abated. At least partially. Feel free to contact me on Facebook, Google or regular e-mail (julies3334@gmail.com) if you ever want to vent about reality. Hugs and hoping tomorrow is a better day.

Suzanne - June 19, 2014 - 9:35 pm

Yes yes yes. Everything you say is true. It can be a world of isolation, half truths and trying to keep up appearances. Hugs to you. This is a very brave post.

D. - June 20, 2014 - 12:55 am

Thank you Shortbusdiary for the above post which validates something I’ve struggled to accept for years. The next time I see family members who inquire of my autistic child because I’m standing right in front of them instead of ever calling; I’m going to tell them, “I get it, Aunt/Uncle/Cousin So & So. We bum you out.”

Vicki - June 22, 2014 - 10:49 am

I love you guys no matter what the “truth” is!!! I know I may not understand all that your’e going through & live so far away to be able to be of much help to you but you can count on me if there is something I can help with & you are always in my thoughts & prayers! Thanks for writing these blogs so I can understand more about Max & what you guys are feeling & doing! I love your pictures too even when you say they’re not good pictures for various reasons! I give you guys sooo much credit for all that you have gone through & done! Keep up the awesome parenting job you are both doing with all the challenges you have had to face. XOXO

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