The Short Bus Diaries » Confessions About Life With an Autistic Son

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The Defensive Stance

A few weeks ago I took my daughter in for her first dental visit.  The appointment was at Children’s Hospital in DC. This location meant that we would have to park in a large underground garage, take an elevator to a large thoroughfare/lobby area, and walk down at least two large hallways, along with anybody […]

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Older Husband - August 22, 2012 - 3:21 pm

Happiness is more of a choice when the rest of your Maslow’s hierarchy is a little more complete. When you bounce like a pinball between doctors offices and the myriad “treatments” to help our son and vacillate too often between complete despair over our seeming inability to help our son and the slim reeds upon which we, as parents of autistic children, hang our hopes for a brighter future, it is hard to really think about what happiness is…let alone how to achieve it. I try to manage the mourning of the death of the son I was supposed to have and mitigate the pain of watching my actual son struggle with things a 2 year old could easily do by forcing myself to continue to believe that we will find something or somebody to help Max. I know the odds are against us, but, I need to believe.

Happiness is that feeling I’m saving for when (not if) we prevail …

Hang in Maya…I love you and at least we have each other despite our less than ideal circumstances!

Filmstrip of Memories

This has been THE blog post that I have avoided writing, ever since I started gathering my thoughts about my son’s autism. I have been putting this one off for a long time in order to avoid ruining the rest of my day. But I need to document, document, document. *********************** Me, standing over his […]

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Different. But Equal?

I’m about to work out some thoughts on the Interwebs that I should probably just keep to myself. Because I’m sure that if anyone stumbles across these, I will surely receive a slew of comments accusing me of being “ableist” or “hateful” towards my son and all other Autistics out there. The fact is that […]

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New Clothes, Rage and Guilt

So the weekend started out promisingly enough.  I stopped work early and went to the mall for a rare (and I mean RARE) two hour wardrobe update experience.  Not to get too far off topic, but I just need to confess that I don’t even bother shopping on sale. I get to the mall about […]

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LH - May 4, 2013 - 11:44 pm

I know this is an older post but I just found your blog and started at the beginning. I also read a blog “No Points for Style”. It is not an autism blog, but you will be able to identify with the Mom that writes about her mentally ill son. The story “Love with Teeth” is amazing and no holds barred honest. I hope it helps.

Maya - May 7, 2013 - 10:48 pm

I read Adrienne’s blog post — the link you sent me — and it all sounded so familiar. I totally agree with being brutally honest, because sometimes the truth is all I have in life. I just don’t have the energy to carefully select my words so that other people feel less awkward about my situation. Also, Adrienne and I are in an autism bloggers forum together, so it was kind of amusing that a total stranger brought me to one of her blog posts. Thank you for pointing that post out!

On Not Being a Very Good Mother

So I feel like [insert bad word] today about my parenting skills.  I’m questioning the wisdom of posting this plainly on the Interwebs, where strangers can judge me.  But I’m committing more fully to writing these days, as I’m finding it effective in helping me figure out just who I am these days. Yesterday, my […]

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